All of them it seems.
One of people’s favorite questions when they hear about W and how he was born so early is something along the lines of, ‘Wow, does he have to go to the doctor a lot?’ If only they knew the list!
W has been seen by :
- craniofacial specialist
- Physical Therapist
- Occupational Therapist
- Speech Specialist
- ENT Specialist
And I’m sure there are more that I just have forgotten. So yes, we see the doctors. All of them! Since we were discharged from the NICU we have seen at least one every week. And being homebound makes our doctor appointments the highlight of the day! Out of the house, in the car and interaction with other humans!!
Not a day goes by that I don’t think about these doctors. How each one of them had a part in saving W’s life or simply making it better for him. They will all be a part of our memories and W will know about each one of them! They got us through and God guided their hands to save our little man.
Recently we learned that W’s PDA (the valve in his heart that was supposed to close at birth but hasn’t) is half the size! It went from 4mm to 2.5! We have been hoping that it would close on its own. If it doesn’t by the time he is 2, they will have to go in and close it themselves. W is on diuretics to keep his heart from having to pump all this extra fluid through his heart. Can’t wait to see what his echo shows in a week…the pulmonologist said she didn’t hear his heart murmur so we are hopeful!
If that PDA closes and we stay germ and sick free, W may just be a regular baby with no issues by his first birthday!
Here’s his first echo after we went home from the NICU…plus the EKG. So many stickies on the poor guy. I think there were 12 total. He was such a trooper.